Join us for the Fifth Annual Sweat It Our 5k and Kids Fun Run on June 1, 2019! Hypohydriotic Ectodermal Dysplasia is a rare inherited genetic disorder that affects 1 in 17,000individuals worldwide. It is a multisystem disorder that typically affects the hair, teeth, nails, sweat
glands, and skin. The primary feature of HED is lack of or diminished sweating: hypohydrosis. TheNational Foundation of Ectodermal Dysplasia (NFED) is a nonprofit organization that helps and
supports families affected by HED. They have been so helpful to the Duke family since the diagnosis of their son Nicholas. Their mission is to empower and connect people touched by HED through education,
research, and support. Their vision is to be a recognized leader among health related nonprofit organizations and will be known for providing comprehensive services with loving care for individuals
affected by HED. NFED will help individuals and families benefit from early diagnosis care, and willcontinue to be there throughout their lives. Ultimately, a cure will be found and NFED will be the force
behind this cure!
Our race has two goals: Raising awareness and raising funds. Please join us again this year for this worthy cause!!
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